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our good sense or sound judgement to be used in proportioning
food and education to come to a correct behavior inside the
family and the society around. We decided not to prohibit any
food, but giving him always half a portion, punishing or rewarding
him according to each situation. Then we gave him full trusting
and Daniele knows well he must deserve it to keep it forever.
We are leaving him alone at home for short periods during the
day in our home where there are no locks and everything is
open and available. Sometimes we ask him to cook our lunch
or dinner, which is something he loves to do, picking up some
ingredients from time to time as all cooks do, even though they
have not PWS! We leave him plenty of time to do it because he
likes listening to the radio while he is cooking and he is singing
dreaming about his bright and happy future. When we reported
the doctors belonging to the Italian PWS Association about the
fact that Daniele studied at the Hotel School they told us we were
fool and irresponsible parents because we had NEVER to leave a
child with PWS alone in a kitchen. We did not make any miracle,
but there is no doubt that we reduced the obsessive tension he
had towards food, which turned from enemy into a friend.
We cannot say we achieved only positive results as his weight is
not the ideal doctors suggest to reach, in theory. Daniele is 1,60
mt tall and at his age of 26 years his weight varies between 74
and 76 Kg. He should lower his weight of 7 extra Kilos to be in
good form, but this could compromise the positive equilibrium
and emotional balance we achieved. Daniele is a quiet boy
without significant behavior problems, goes to work alone and
within the village where we live.
Giorgio and I believe we must come to a compromise and accept
a son who is fat (not obese) but happy, without turning his life
and our life in a hell to reach theoretical results so he will hate the
world he loves so much.
I have no other secrets as you call them, except a very important
addition to what I wrote above… much love.
Hugs
Yours Maurizia
“PARENTS CAN REALLY MOVE THE MOUNTAINS” BUT WE COULD
MOVE THEM BETTER AND FASTER IF PROFESSIONALS AND
DOCTORS ARE HELPING US TO PUSH MORE!”
Many thanks
Giorgio Fornasier
IPWSO Director of Program Development
[REV. MED. CLIN. CONDES - 2015; 26(4) 503-510]